Charlie Gard has the US Presidents backing coming to the US for treatment, but British Hospital will not allow it.

This is the most heart wrenching story. The United States President has backed this family in desiring to bring Charlie to the United States where doctors have an experimental treatment that can save his life potentially. The doctors and US hospital want to bring him to the US with support of the president, members of congress and many others. The United Kingdom death panels, and horrible health care system there are fighting to prevent this precious life from having a chance. This is greed, politics, pride and pure EVIL. The family has raised almost 2 million dollars for this experimental treatment, and the British medical professionals are still fighting it. Charlie suffers from a rare condition called mitochondrial depletion syndrome and has serious brain damage. US doctors believe their experimental treatment could save his life.

This is the precious baby and family:

I want to know where is Prime Minister Theresa May, The Queen, The Whole Royal Family for that matter, where is parliament. Shame on all of you who have power to influence, and give this child, and family a fighting chance. If Charlie dies before getting this treatment then his blood is on all of you for history, you #shameful, #greedy and prideful #cowards. People of the U.K. Do not let your Royal Family and or government be left unaccountable for allowing this. Remember this when you vote, speak out, protest, call parliament, fight for this child, because this issue is much bigger than him, you or your child may be next.

This is a prime example of why universal health care is awful, these death panels and the power the government and these medical professionals hold is wicked, ridiculous and evil.

My Son was born three months early and they told us several times to abort and that he would not live. He was 2.2 lbs at birth, and we sat day in and out for 3 months in a neonatal icu with him. He is alive, 5 years old and perfectly healthy. It is not the doctors decision for your child's life, that is between the parent and the creator. As a parent I would go to the ends of the earth, and do anything I had to in order to save the life of my child. I have 5 little ones under 6, 2 of them have Cystic Fibrosis, and I will support them, and fight for them everyday. Life is precious, and if God has enabled Man to find a possible treatment for Charlie's condition then no government or person should be allowed to prevent it, especially when the family has raised close to 2 million dollars for the treatment.

Please pray and fight for this family.

Advertisements

Why We Love Writing, And You Should Too…


Writing is an incredible form of expression. It allows you time to gather your thoughts, and organize them onto paper whether its a blog, journal, research paper, quick notes, you name it. There is an incredible power in the art of writing, and the health benefits.

Writing as a stress relief:

1) I have learned to keep a digital journal at my job to record my days events, to protect myself for accountability in my line of work, as well as write out my frustrations to allow me time to reflect on them, before trying to remedy issues that need addressed.

2) Writing down ideas, dreams, and goals helps you to make plans, and take actions to change your life by making your thoughts a visual reminder.

3) When learning new material whether it’s for an academic class, work or self reflection making notes, writing down main points, items that stand out help you to put that content into long term memory. This will help with frustration and organization.

“Stress, trauma, and unexpected life developments — such as a cancer diagnosis, a car accident, or a layoff — can throw people off stride emotionally and mentally. Writing about thoughts and feelings that arise from a traumatic or stressful life experience — called expressive writing — may help some people cope with the emotional fallout of such events”. -Health Harvard

“You can use journaling to help you deal with stressors you don’t feel comfortable sharing with others. Stress psychologists have shown that journaling enhances immune function and can alter the course of chronic conditions such as rheumatoid arthritis and asthma”. -Pamela M. Peeke, MD, MPH (healthywomen.org)

“A groundbreaking study of writing’s physical effects appeared in the Journal of the American Medical Association (Vol. 281, No. 14) three years ago. In the study, led by Smyth, 107 asthma and rheumatoid arthritis patients wrote for 20 minutes on each of three consecutive days–71 of them about the most stressful event of their lives and the rest about the emotionally neutral subject of their daily plans.

Four months after the writing exercise, 70 patients in the stressful-writing group showed improvement on objective, clinical evaluations compared with 37 of the control patients. In addition, those who wrote about stress improved more, and deteriorated less, than controls for both diseases. “So writing helped patients get better, and also kept them from getting worse,” says Smyth.” -Bridgett Murray (apa.org)

So take a few minutes today and Journal your thoughts, or write down some goals and ideas you have. Happy Writing and Happy health.

Weight Loss, Cystic Fibrosis and Lip Gloss

Well its been awhile since I wrote to you last. A lot has happened. I have continued with my journey on losing all of the extra weight on my body. I am still doing my workout routine and taking the supplements that have saved and changed my life for the better. I am down now almost 20 lbs in 30 days. I have more energy than I ever remember having since I was a teen, my joints, muscles and body overall does not ache, and hurt like it used to. I have better mental focus and clarity, and a whole new outlook on life. It’s amazing that I can now get down on the floor, and play with my kids, run around with them, and I have tons of energy to work on the house now, instead of relying on my wife for it. Before starting these supplements I would come home from work, and collapse from being worn out, from not being able to keep my blood sugars were they needed to be. My blood sugars since starting these supplements have been consistently under 120 which is perfect!, and I am taking much less insulin. I cannot wait to be able to be done with Insulin all together.

IMG_2920.JPGSo, my son Gunnar 3 months old who is pictured here has Cystic Fibrosis. On Friday he was admitted to a Children’s hospital where we live as he has a horrible congested cough. He will be there for 1 week on strong antibiotics, respiratory therapy, and a battery of tests to make sure they get everything covered. I have come to respect all that my wife does so much more, as I have been solo at home with our other 4 children since this happened. Thank you to all of the amazing mothers out there, so much respect for you and all you do. Yes I will admit it lol I am at times overwhelmed, but I love my kids and its been fun, crazy, and all the above.

 

 

Fun example of my chaos: Helping my two sons go to the restroom, in a split second my 2 little girls sneak into my master bathroom, open my wives lip gloss, proceed to grab multiple q tips and smear the lip gloss all over my bathroom toilet seat. They have to have some higher power connection to stop time, because I have no idea how in a matter of less than 1 minute they cause as much chaos as they are so capable of LOL. Fun memories, but Lord almighty I miss my wife, praying for Gunnar to heal and have them home soon. #daddyneedsavacation

Day 9…First Milestone Done!

Alright I made it through the 8 day challenge. I lost 6 lbs and 10 inches overall. That is pretty awesome. Day 9 and 10 are cheat days within reason of the plan. It was awesome today to mix it up a little with some Mexican food, pizza, and some random items. I feel great. I get 1 more cheat day tomorrow, then I am off to days 11-30 back on my strict regiment of weight loss, life changing and habit-forming in the way I eat, and now I will begin incorporating exercise.

1 lb at a time, 1 meal at a time, and 1 day at a time has helped me stay focused and on task with my life style change in how I eat now. My blood sugars continue to be amazing with eating on plan, lots of energy and overall attitude with life has improved, not so grouchy anymore from blood sugars not being in a good spot.

Got to get some rest, so I can get in as close to 8 hours as I can. Recommend some nice warm herbal green tea.

Stay tuned as the transformation continues…

Groove of Weight Loss…

OK so my goal is to write everyday. I will get there, but man life, work, kids, it has been difficult to get away to post. Today is day 6 of being on my new way of eating to improve my health. I am down 5 pounds, and I have more energy than I have had in like 7 months. My blood sugars are stable and normal levels, I am sleeping much better, and enjoying life more. 3 more days to go of my 8 day ignite plan, then on to the next week.

I try to make my family amazing, and delicious meals to eat, and I will admit it has been difficult at times not to want to eat my creations with them. But, once I get past these initial beginning stages, my new plan opens up some more, and I plan on making some amazing seafood dishes for our family that I can enjoy with them. Staying positive, feeling up beat, exciting to see the pounds continue to burn off. I am ready to be thin, and keep it off for life.

Next, begin incorporating more exercise into my routine each week. Words of encouragement to anyone out their who has extra weight they want off that they have struggled with their whole life. Take it one day at a time, 1 pound at a time, join me in working to reclaim the rest of your life, have the body you want, and be healthy.

A motto that I have heard that is so true “Eat to Live, Not Live to Eat”, reprogramming my brain and body from my old ways of thinking and eating! Ok Day 7 here we come.